Hello, readers! As we navigate the path towards greater inclusivity and understanding, it's crucial to discuss the terminology we use to describe individuals on the autism spectrum. While terms like "high functioning" and "low functioning" have been traditionally used, it's important to recognise that these labels can oversimplify and even harmfully pigeonhole the experiences of autistic women. In this blog, we'll explore why these labels are problematic and explore alternative ways to foster a more compassionate and accurate understanding of autism.
1. The Spectrum Is Vast and Diverse
Autism is a spectrum, not a linear scale. It encompasses a wide range of strengths, challenges, and unique characteristics. The terms "high functioning" and "low functioning" oversimplify this diversity, ignoring the complexities of each individual's experience. By labelling someone as "high functioning," we might miss the challenges they face while labeling someone as "low functioning" can undermine their abilities.
Autistic women often engage in masking or camouflaging behaviours to fit in and meet societal expectations. This can make it appear that they are "high functioning" because they seem to navigate social situations well. However, masking can be mentally and emotionally exhausting, leading to burnout and a lack of understanding of their internal struggles.
3. Context Matters
Functioning labels don't consider the variability of abilities across different contexts. An individual who appears "high functioning" in one environment might face significant challenges in another. For example, an autistic woman might excel at a structured job but struggle with sensory overload in busy public spaces.
4. Neglecting Support Needs
Using functioning labels can lead to assumptions about an individual's support needs. An autistic woman labelled as "high functioning" might be denied necessary support and accommodations because of the misconception that she doesn't require assistance. This can lead to isolation and hinder her growth and development.
5. Pigeonholing Potential
Labelling someone as "high functioning" can create a glass ceiling, limiting their opportunities for growth. Assuming that someone's abilities are limited by their label overlooks their potential to learn and develop new skills. Every autistic individual, regardless of functioning label, has the capacity for growth and progress.
6. Underestimating Abilities
On the flip side, calling someone "low functioning" can undermine their capabilities. Individuals who may have difficulties with communication or daily living skills still possess unique talents and strengths that can be nurtured and celebrated. We should avoid defining their identity solely by their challenges.
7. Communication Differences
Communication styles can vary widely among autistic women. Some might struggle with spoken language but excel in written communication or nonverbal expression. Functioning labels disregard these nuances and fail to capture the rich diversity of communication abilities.
8. Focus on Intersectionality
Autistic women are a diverse group with intersectional identities. Factors like race, ethnicity, gender, and socioeconomic background intersect with their autism, influencing their experiences. Functioning labels overlook these complexities and perpetuate a one-size-fits-all approach.
9. Shifting the Conversation
Instead of relying on functioning labels, let's shift the conversation towards understanding an individual's strengths, challenges, and support needs. By focusing on specific traits, skills, and preferences, we can create a more accurate and respectful portrayal of autistic women's experiences.
10. Embracing Neurodiversity
Neurodiversity is the concept that neurological differences, including autism, are natural variations of human experience. By embracing neurodiversity, we celebrate the richness of diverse minds and acknowledge that everyone has unique contributions to make.
As we journey towards a more inclusive and compassionate society, it's imperative that we critically examine the language we use to describe autism. Functioning labels like "high functioning" and "low functioning" oversimplify and limit our understanding of the vast experiences of autistic women. Let's replace these labels with a more nuanced and respectful approach that acknowledges the diversity, strengths, challenges, and support needs of everyone. By embracing neurodiversity and fostering a culture of understanding, we can create a world that truly values and uplifts the voices of autistic women.
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